Amazing News!

Just a short post tonight to share our wonderful news.

Cailin is 11 months old today and has been home with us for as long as she was in the hospital. But that's not the only exciting news. Tim, Cailin and I went to see Cailin's pulmonologist today for our regular visit (we hadn't been since May). And, based on how well Cailin's oxygen saturation levels had been with a few trials without her cannula, (some planned and some accidental) he recommended that we take Cailin off of oxygen while she is awake!!!

By no means am I complaining here but I need to add that caviat of "while she is awake" because she will still need to wear it whenever she sleeps. We have come to learn that when anyone sleeps, their bodies relax and oxygen saturation levels naturally drop. That happens with Cailin as well. However, with her sick lungs, her levels drop lower than they should. Since no one wants her working too hard, burning precious calories or not getting restful sleep, she'll get the cannula and oxygen back whenever she naps or sleeps at night.

While still not free of the oxygen, we are just thrilled at this news. Cailin will get a break from that annoying cannula for half of her day! And, the thought of being able to just "get up and go" without having to lug around a heavy tank, O2 tubing and the probe around her foot seems almost too good to be true.

Since we think she looks so beautiful without her cannula, we took a few (201 to be exact) pictures of her today. We widdled them down to 10 and you can see them all by clicking on this link or, for those reading this on the blog rather than via e-mail, at the top right of the blog.

But, here is one of my favorites...


As always, thank you for being a part of our journey. We hope everyone is enjoying their summer!