I'm thrilled to report that Caili's trip went very well. It was delayed until this afternoon (Monday), but she was all settled into her beautiful new private room by about 6 PM. DuPont's NICU is brand new--the official grand opening was last Wednesday. Caili's room is huge, and of course everything is new. Just as with Jefferson, the people there all seem to be wonderful. Of course we've gone from being long-timers that know pretty much everyone to being the new kids on the block that know no one, but everyone has been very welcoming. We just feel a little out of sorts.
Caili seems to have weathered the trip extremely well. They've already been able to wean some of her medication, and while the new CPAP equipment--long prongs pushed deep into her nose--will take some getting used to for all of us, overall she seems to like her new digs.
And Mommy loves one aspect in particular; as it turns out, the parent's bathroom at the NICU just opened, and thanks to that, they now officially allow one parent to spend the night. Caili's room has a fold-out couch, so Lauren is at this very moment spending her very first night ever with Caili (not counting the 24 weeks of gestation of course!). I'm thrilled for them both, and sorry to be missing it.
There is no word yet on when all the tests will begin, but we're very hopeful they'll be later this week, and that soon we'll have some answers that will help us to get back on track to bringing Caili home.
As always, thank you all for your ever-continuing support and prayers!
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6 comments:
Tim and Lauren,
I am following your blog after learning of your situation only recently. Your daughter is beautiful!! Our hearts and prayers are with you, and I hope that DuPont proves to be the final short stop before going home. Love from your Oklahoma cousins, Leslie, Tod, and Katie.
I was so happy to here everything went well. We will miss her and your family. Looking forward to hearing more good news.
Keep in touch
Cyndi, OT and the Pediatric Rehab team.
Hi Tim and Lauren,
I am so glad to hear that Caili's trip went well and that Lauren was FINALLY able to spend a night with her daughter, what a beautiful thing! I hope the tests go well and bring her closer to going home. We will continue to keep you and your family in our thoughts and prayers.
Love, Ancona and family
Dear Tim and Lauren,
"Home is (always) where the heart is'" and Cailin has been at her home with you every step along the way. She is truly blessed to have such wonderful and courageous parents. I think of both of you often, and I am proud to be able to say that I know you. I am only a cell phone call away (610-529-9107) and I am available to help you in any way that I can....... anytime.
My prayers are with you and Cailin.
Danny DeCrescenzo
Dear Cailin, Lauren and Tim,
We've been thinking about your family and we hope that the tests go (or have gone) well, putting Cailin back on the fast track home.
Regards,
Maram, Samira, Amal and Max
I have never been so jealous...LOL! That is awsome, the pull ou couch... You never have to leave her!!! -Candace
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