They've been telling us to expect good days and bad, and good friends of ours who have been through this (with triplets, that are now wonderful, healthy little boys) and have been an incredible support to both Lauren and me--told us from the beginning that the line between a good day and an awful day is paper-thin. Babies born as early as Caili are simply so underdeveloped that little things can have big impacts...
After looking incredibly sick and lethargic two days ago, and having real difficulty in terms of breathing, Cailin had a good day yesterday, but not such a great night last night. Today was again better and when we left at 10 PM. She seemed to still be doing relatively well. Her fiestiness had returned, which was a tremendous relief. Hopefully the night continues to go well for her.
Lauren is doing better; the mother of one of Caili's neighbor's made the point that the quality of their days guide our days, and that has been very true for us. This woman's son just passed 120 days in the NICU, which from where we're sitting seems like an eternity. Her son came off the vent today, but she still has a lot of time to go before she can take him home. We so hope to have Caili home by Christmas, but in truth that is seeming like a longshot at the moment. But whenever it happens, it will be a wonderful day.
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3 comments:
Hi Tim & Lauren,
I love Caili's blog. I already entered a comment on something that popped up on my computer, so I
appoligize if this is a repeat. After I entered it, I could not find it posted anywhere, so here I go again.
So much of what you've entered on her blog brings back emotional ties to our past. Ben was also on the jet-ventilator. He maxed out his time allowed to be on it with a
miraculous turnaround. What a roller coaster ride, we remember so well. We would call family one minute to report good news and would turn around to have the doctors telling us he was taking a turn for the worst. That jet-vent was such a loud machine 18yrs. ago.
Is it's sound still so intense? We feel as though we can identify with a lot of what you're going through and yet our situation was very different in that Ben was a full term baby. None the less, we
were told that his chances of survival were not very good. Here we are 18yrs. later. He's 200lb., 6ft.tall and playing a lineman for his schools football team. We only
could have imagined that back in his NICU days. Caili will never be
able to fully appreciate what you
have invested and are going through to give her the best start
that you can for her life. Although, you too, will never be able to fully appreciate what Caili
has invested and is going through at this time in her life. Ben was
nick-named the wild boy of the east in the NICU at Hershey Med.Ctr. He was a fighter and it sounds like Caili is too. Life is hard my friends; but God is good. There are a lot of people who will be able to remind her as she grows up about the love and support her parents poured into her. Blessing to each of you. Our prayers will continue to cover you through this journey.
Donna Englerth (for Ray and family)
A sister of a coworker sent me your blog link. I am thinking of your family and of gorgeous little Cailin!!! Hang in there - the NICU is a rollercoaster with scary moments and beautiful moments. Try to look for the quiet moments where you can really enjoy your beautiful girl. You'll remember those moments forever. My family and I send good thoughts and warm wishes.
-Jane, Todd, Owen, and Henry
Tim, Lauren and Cailin,
Please know that you are in our thoughts and prayers. She is absolutely precious.
Rick and Lauren
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